Sunday, November 30, 2008

Thanksgiving...

Thanksgiving was a lot of work. I set the table the night before and set up my vegetables as well. The children were with me so between hunting down all the chairs, place settings, decorations, etc as well as cooking and trying to keep the children contained in the TV room it was tiring. By the time I got home I was ready for bed. Thanksgiving went well except my eldest brother tossed away a lot of the leftovers. So I relieved him of his job and took over dishwashing. It was a lot of work, but I wanted to do it like my mom did. I just don’t get my SIL’s later on they wanted to use paper plates for dessert! I mean WTF it is a holiday. I insisted on regular plates and said I would wash them myself. Actually another SIL did that so I was spared. Most left after dessert. Greg and I stayed behind and emptied the dishwasher and cleaned the crystal by hand and out it away. Today I have to go back and do the linens.

The Sarcoidosis is on the move I think. I feel more pain in my chest so I think it is moving to my lung. I am also having my colitis attacks again. It started the day after Thanksgiving and I have had it every morning since then. Today my abdomen is in a lot of pain so no church for me. I am hoping it eases off so I can get to the laundry at my mom and dads house.

We have started shopping for Christmas and bought a couple of games for the children. They were on sale at target for $4. I got there early enough to get some. A lot were already gone, as some took cartful of them. I looked on e-bay and saw a lot of new auctions so I know where they went. We bought some presents with a gift card we got last year so that saved us a lot. We rarely use gift cards. It is just usually at stores we never shop at or is hard to get to. This one was for Linen and Things which is in a bad spot here and always has a ton of traffic. It is going out of business though and so most is at 50% off. We got some nice things there for my brothers/wives.

The hag visited me early yesterday morning! Oh well. I really don’t think I am having another baby. I am very sad over this. My heart is breaking at the thought of not having another baby. I am doing a baby blinkie for a group on the pregnant side of FF. The babies are cute and I enjoy doing it. My heart does break though thinking about that I will never have another. I try not to think about it, but I just can’t help it. It used to be only the angel blinkies made me cry. Now the baby ones do too.

Thursday, November 20, 2008

E-Bay...

Well I am trying now to see my stuff on E-bay. I found out that some of my bears are selling a bit so I will list those shortly. I really don't want to but at this point I just have to. In the mean time I am selling my lights.

http://shop.ebay.com/merchant/slow-beans

I am "slow-beans" there because I used to buy Beanie Babies stuffed animals and I was always too slow to win the good auctions.

Wednesday, November 19, 2008

Sarcoidosis is touring again!...

I saw my Pulmonologist yesterday and got the test results from last week. The good news is that as of date my liver has not gotten the Sarcoidosis. I am happy about that ass Greg told me that in 95% of cases it moves to the liver. Not sure what they can do about it then. The bad news was that my bone density is a tad bit on the low side. Not much but it is low. That is from the prednisone though and not the Sarcoidosis. So since I am weaning off of that and down to 15 milligrams now we will wait for me to wean off of it and test again. I do not want to take the meds for this, as it requires you to stand up for a half an hour after taking them or you throw up. I am already throwing up with the prednisone so I am not wanting to take this and throw up some more. Also the news was not good on my lungs. I do a test there every time I go and apparently the results show that the Sarcoidosis is moving into my lungs now. Nothing to bad as of yet but if I start coughing or wheezing I will have to start treatment. I am having pressure and discomfort that I thought was from my lymph node and the Sarcoidosis and dead tissue there but I think now it is from the lungs. This Sarcoidosis is just taking a tour of my body. It seems to be going from top to bottom so I am thinking I am not out of the woods with my liver getting affected. I think the doctor is on the same page, as he wants me to repeat my liver test every month.

On the lighter side. Lara is doing well at CCD class bit not at school. She hates it. She has also started to toss her sandwich in the garbage and then tell us it fell on the floor. Today I had a talk with her about wasting food and how if she does that we will not know she doesn’t like the food and so will continue to give it to her. Also I give her scrapes to the squirrels and they are hungry. The last part was the charm and sop she said she will not toss her food in the trash anymore. Anthony is doing well and growing every day into a little man. We are working on getting him off the diaper and on the pot. His daddy got him to stand to do his business and he is proud of that. The bedtime is going well. They both go to bed on time and Lara goes to sleep fairly quickly. Poor Anthony though is a night owl and I can hear him talking to his stuffed animals for a while after we have left the room. He does keep it down though so he is good about that as Lara can go to sleep. Greg and I continue to have stress over finances and medical bills, etc. He also just has these notions on what a wife and mother should be like that is based on his mom. I can’t talk about it as we lost her two years ago to cancer. He does though expect me to be a certain thing and I just am not like that at all. I just have to be true to me. KWIM? We are trying this cycle again with the instead cups. I do not think it could happen at this point with my age and health going against me. I am really just going through the motions at this point and not even temping.

Tuesday, November 18, 2008

Project Christmas.......

I am hoping that I will earn enough money to get some presents for the family. So if you have enjoyed the art work I have done for you now is a great time to let it be known to me.

As for the Sarcoidosis? Today I get the results from, last weeks tests of my bone density and liver test. I should see if I am loosing bone density or if the Sarcoidosis has move to my liver yet. Hopefully it is not in my liver but the pain I get in my mid drift does not look good at all to me.

Saturday, November 15, 2008

And so it goes...

I saw the NYC doctor on Friday my prednisone is not going to be cut as fast as the original plan. Now he wants me to go by increments of five. So I will go from 20 milligrams to 15 then 12.5, 10, 7.5, 5, .5 then nothing. So it is a bit slower but there is only one week instead of two for each dose.

My eye can see fine now so that is good. My middle is getting the pain back again. When I woke up today I was in pain so that is not good. I just hope this does not mean that they Sarcoidosis has moved to my liver. It moves to the liver in 95% of patients according to Greg so that is a possibility. I also get pains in my chest so I am thinking that could be the lymph node acting up. This is just no fun.

Greg and I fought on Friday. He is upset about taking so many days off from work. I used up all his vacation days on my appointments. I thought he was using sick and personal but he used vacation. In his shoes I would have used sick and personal as it was no vacation. I just don’t get him. He also complained about how much we are spending on my medical bills. We had a big fight on that. Basically I told him that I will not go to another doctor then, but then he was mad for me throwing away my health and said he wants me to go. So what is left to do? Either way he is mad and I get mad at him for being mad at me. After all I didn’t ask for this and I did nothing to bring it on.

On the lighter side Lara and Anthony are both well and happy. Lara now likes to go to CCD class, but still hates to go to school. Anthony still doesn’t understand why he can’t go to “4 year old school” even though he is four. He just doesn’t get cut off date’s poor boy. They are both going to bed at 8 PM and staying there to get their stickers so that is working well. I am loving the bed times too as it gives me time to be alone. Greg and I still go our separate ways then so no couple time. He is just very whiney as of late. Today as I was baking cookies he whined that he wanted me to buy chocolate chip cookies instead to bake. He didn’t bather to check the oven as that is what I was making. Instead he just whined he wanted them. Ugh! He also whined about his cousin and I not talking to each other. I feel she should apologize for being rude that Christmas. After all she was the one that kicked me out of her house and as I was going physically attacked me.

Just a recap. I had asked my SIL if there was meat in these mushrooms she made. Well his cousin said that I should just eat the damn food without asking if everything has meat or not and if I didn’t like that rule I could get the hell out of her house. I am a vegetarian who is allergic to meat so I have to ask. So I got up to get my coat to leave. Well she came after me and grabbed me and said I was raised wrong. That I should just eat whatever was placed in front of me when a guest and not ask anything. I freed myself and yelled at her to leave me alone. I walked away and again she came after me. I called her rude and an anti Christmas spirit and she kicked at me. At this point Lara and Anthony were crying and Lara was trying to pull her away from me. Greg had grabbed Anthony, his sister got Lara, and his cousin’s husband got her. She told me the stress she was under making the dinner and that I should appreciate it and realize that she has all this stress that I knew nothing of. I ended up blurting out that I was having a miscarriage and so had stress of my own. She told me that my baby wasn’t the first baby in history to die and it was no big deal. We left in tears the lot of us with my FIL yelling at us that I had ruined his Christmas the first one he had since his wife died. Lara was crying she tried to protect me but she was too little. I haven’t been near her since and that was Christmas, 2006.

So Greg thinks I should call her. I think she should have called me since she was the instigator and the one that kept it going. She is having Thanksgiving and his dad is hinting we should stop by. Ummm not really what I want to do as I am sick enough these days without adding her to the mix. The thanksgiving at my parent’s house is coming together so that is good. I will just concentrate on that. Nothing in the TTC world yet.

Wednesday, November 12, 2008

Still ill.......

For some reason I am feeling sick and tired all the time. Just a general feeling of ill health. My apatite is not great and I get full easily. So I am not eating that much. I am achy all over too which makes me just want to go to bed. I am also cranky and yell a lot so I am not fun to be around. I am hoping that by thanksgiving with my dose down to ten milligrams I will be better.

My three brothers and their families are getting together with us at my parents house on thanksgiving. An aunt from New Hampshire is also joining us as well as her son. So things are coming together and they are not going to a $100 a plate meal. I am bringing Brussels sprouts and peas/mushroom/onions. I will also set the table, as I know where everything is having done this for my mom for years now. We are getting everyone settled on what to bring. I hope it will work out well. One brother said he didn’t know how to make mashed potatoes and so wanted to bring those bud things. My aunt bailed him out and said he would do it. When I read his e-mail I just responded to boil some potatoes and then mash them. I am no help. Anywho I have to go to make dinner.

Monday, November 10, 2008

The Weekend...

I managed to survive Lara’s four days off. Now she is back at school and really mad about that. She woke up this morning and asked first thing if it was a school day. When I said yes she screamed she was sick of school, that she had enough, and she was done with it. The morning went down hill from there. She hated everything and was just a grump. She also woke Anthony whom also became a grump.

Back to the weekend. Saturday we spent most of the day at home as Greg wanted to take care of the leaves in the front yard. After we went to go bowling as Lara had gotten five bedtime stickers and so wanted that as her treat. Well, when we got there we found out they didn’t take credit cards. Only cash and checks neither of which we had so we had to go. The children were not happy about that! So we bribed them with Friendlie's Ice Cream which worked.

Sunday was the usual church and CCD class. Then armed with cash we managed to scrape together we went back to bowling. We had a children’s lane with gutter guards up. Even then I didn’t make 100. I forget the score maybe 80 something? Anywho Greg won with a 114, and then it was me, then Lara and then Anthony. Greg looked like he knew bowling as he did all the right moves. I just went to the line and tried my best without any of the wind up. Lara went to the line and threw it right away so she is actually closer than me to this as I stop. Anthony goes to the line puts the ball on the floor and roils it. It takes forever to get to the pins but he actually got a strike and a spare during the game so it seems to work. Later on we visited my parents and I took my beanie bear collection with me. I wanted to sell them on E-Bay. Last night though I found out that they have no value anymore so I don’t think I will be selling them after all. I was hoping to get holiday money for them. As much as I didn’t want to sell them we just need money for Christmas. Well that is out and so I have to look to something else.

I E-mailed my brothers to see what plans are in the making for thanksgiving but no response yet. Found out last night that another poster here copied one of my blinkies and took away the writing. Then when another poster asked for a blinkie she added the phrase they wanted and posted it as her own work! Ugh the font was all blurry and off centered and she just made a mess of it. It bothered me that someone took my art work and just stole it. Then to top it off she did a bad job of remaking it. I know it should bother me but it really does. I mean I really put my heart into my work. She should have made her own.

Other than that I am just feeling run down and hung over today even though I didn't drink yesterday. I am also achy and was sick again last night. I have a bone density appointment this week and I also have to go to the city on Friday to the optic Neurologist. I am also very edgy and easily made upset. Anthony is driving me crazy today as he is still in a snit. I had a talk with Greg this morning but who knows if it sunk in. I basically told him I am not happy being sick and that I don’t appreciate him saying things when I do get sick. Like last night when he was asking me if I made sure I cleaned up everything I the bathroom after I threw up. I mean I would never say that to him. Who wants to throw up? I was feeling so ill after. He said he got it but I know next time he will say the same things.

Thursday, November 6, 2008

Feeling Down...

I am just a bit down about the Sarcoidosis. I guess I thought by this time I would be feeling all better and I am not. I was happy to drop the dosage down to twenty milligrams of prednisone as per the doctor. It didn’t do a lot though. For the first few days I was more tired, but still wired if that makes sense. Then on Tuesday after the children had been particularly troublesome at dinner I got really sick and barely made it to the bathroom before loosing it all. I think my mom calling me about thanksgiving right before dinner didn’t help make me any better either as I had an argument with her. She just doesn’t get that my brothers are going to do their own thing. Sure my brothers can say they will get together and everyone can make something, but their wives are the ones that rule the way with this stuff. They are on the fast track so to say and since they work have money to spend. So to them it makes sense to spend $100 a plate on a holiday rather then cooking and cleaning. After all that is what anyone that is anyone does in this fast track. We just don’t have the money to spend like that and actually even if we did I wouldn’t like it. I think that a holiday like thanksgiving should be spent at home. Not out at a fancy restaurant, but that is just me I guess. Anywho my brother’s wives will call this and we won’t get a call. KWIM? I still have a hard time going to sleep and once asleep cant stay that way. Greg said he was scheduling a bone scan but didn’t. I have yet to see a hematologist as well so nothing is going on now. The hematologist that was recommended was the same his mom saw. Well the last time she saw him he said she was doing better even though she said she felt worse. On the way home they went to the ER, as she really didn’t feel well. Seven days later she was gone, so we really don’t have faith in this doctor. He just wants to see as many patients as possible and get them in and out with very little time for each one. You know the type. The ones that are in it for the money only and not for say health care. He took a “Hypocrite oath”. So all of this is making me down.

Lara is home from school for the rest of the week so I have them for four days straight. I have to think of something fun to do with them. I started off well with pancakes that they both loved. We started a bed time at 8 this week and it is going over very well. They go to bed after getting their teeth brushed and their faces washed. They then get two stories and then they stay in bed. So far I have read the same book over and over again. It is “Fred And Ted Go Camping” by Peter Eastman, PD Eastman’s son. Anywho they really like it so I read it to the twice every night. They both like it so that is four readings a night. I know the book word by word now. Anywho if they stay in bed and quietly go to sleep in the morning they get a sticker on a chart. After five stickers they can get a treaty like an ice cream or small toy so they are excited about that. They actually say they want to go to bed! Also Greg and I get time to ourselves which so far means that Greg goes to sleep and I go to the computer. There is just no spark left. Greg just doesn’t act the same anymore. He complains when things are low like milk. Well he uses the milk too doesn’t he see it going down? He could have just picked some up on the way home. Why do I have to tell him to do it? Also he wants the bank problem fixed. So again it is my problem not our problem. I think this all stems from his parents taking care of all of this for him up to the day we were married. I mean Greg’s dad used to do his banking! He would deposit his checks so he had his own strange direct deposit! So now I am supposed to be like them. He also would complain about the stuff they bought and they would buy what he liked only. He was spoiled! Reality has hit him hard, as I don’t always buy just for him. He might prefer the size ten Barilla linguine but if it isn’t on sale he isn’t getting it. He is just going to have to settle with the sale stuff n the size that is available.

Well today I am 11 DPO so not much more time before I see if anything good has come of these drugs. Only time will tell now.

Tuesday, November 4, 2008

Voting Day...

I already voted so that is done with. There was a small line but nothing big. I had to wait twice though as I never know what district I am in. Ugh my brain amazes me sometimes, and not in a good way. Anywho so the dye is cast so to say.

Lara is home from school today so we are going to try to do something fun. I am not feeling so well so I think the leaves raking is out. I think I might be able to entertain them with board games and cookie baking. Hopefully that will work.

I am just feeling very run down today. My mom called last night and told me that she is going to spend thanksgiving in Colorado with my brother Dan. Why she had to call me I don’t know. She could have waited on this. So there will be no Thanksgiving for us as my brothers the last time they did this went out to an expansive restaurant. They didn’t bother to invite us because it was over $100 a plate and they know we can’t afford to spend $400 on a dinner so they “spared” us. So kind right? So we went to his cousins, but that was weird, as they wanted to do a kiddy only table. Well I want to eat with my children and as they were the only children it seemed strange to have twenty on one table and two on the other. Also the table was a bar table with bar stool so it was four plus feet off of the floor! This was two years ago so Anthony was only two. They got mad at me when I said I thought it was not safe for him to be up that high. They just expected me to do whatever they wanted. That does not sit with me at all. First and foremost I am the mother and will do what I feel comfortable with, not what other want me to do. KWIM? Any who we will probably just have a meal here alone. Not sure what I will make as I am not making a turkey as only Greg and Anthony would eat it. Not to mention I am a vegetarian o I really don’t want to handle raw turkey. I really wish mom hadn’t called.

Off to entertain the children. Wish me luck.

My Weekend...

Saturday went really well at the lunch and I had a great time. It was nice to meet my online buddies in person. The food was great and I ate everything. I even had desert which I rarely get. The best part of all was that I was able to hold it all down! This makes me think that maybe it is the tension of keeping the children at the table, etc that is making me ill after the meals at home. I am constantly trying to get them to behave and I think that in combo with the steroids is making too much stomach acid which makes me get sick. At any rate with a calm meal I kept it all down which hasn’t happened in a long time. Usually I loose something. Any who we got back late as it took two hours to get back home! It usually takes under 45 minutes. Greg’s sister Debbie was angry because she had to get ready to go out. Next time I will stick to getting my parents. I had my parents all set to sit, but then Greg said his sister was looking forward to sitting and we had to use her. So we had to use her but on her terms. With my parents we have more flexibility so we will go with them next time.

Sunday we had church and CCD class. We went to a garage sale by the KOC in our town. I picked up a couple of sweaters, a sweater for Lara, four books and some leaf crystal votive candle holders cost me $3! Later on I got Lara a Hula Hoop for 50 cents, and a board game of happy feet for a dolor. I wish the children had picked out their items faster we probably would have just paid the one $3 for all, but it was still cheap so I really can’t complain. Later on I took all the Halloween decorations down and put up the Thanksgiving ones. I switched my holiday earring to Thanksgiving too. Then Lara went bike riding. The children and Greg had dinner and hung out for the rest of the night. Greg was ticking me off by correcting everything I said so I just went and did some computer graphics. Had a glass of wine when I was done and went to bed.

Lara did not want to go to school today but it is a short week so it will not be too bad. She is of tomorrow, in on Wednesday and then off Thursday and Friday. I have no clue what to do with them but it has to be fun. I am thinking of raking leaves and having them jump in them. That is something they love to do and involves no travel. Plus we get the lawn cleaned up! A win win situation. I am in the two week wait so nothing to do there but, um, you know……wait.

I was giving Anthony lunch on our living room couch about an hour ago. I give it to him there so he and I can watch TV. He asks out of the clear blue “Momma why aren’t you having another baby?”. So I told him that we were trying and that it is up to God if we are going to have another baby at this point. So he says, “Maybe you are not pushing hard enough?”. With this he leans back and opens his legs apart and grunts saying “push, push”. He then tells me all I have to do is push harder. He looked like a woman giving birth, as he was semi reclined and pushing his torso through his legs. Maybe I have been watching too much baby TV? I can’t remember the last time I saw “Baby Story” it has to be a good year ago.

Saturday, November 1, 2008

Lunch date!!!

Yesterday was very busy as it was also laundry day. So I did all the laundry, baked cookies (they were in a package but I cut them in half and added my own frosting to make “Oreos”) baked pumpkin seeds and got the children ready for the holiday. Lara went to school as usual and Greg worked at home. I picked Lara up for lunch, fed her and got her back to school for a costume parade. My parents came down to see it and to spend time with us. My dad was edgy to get back to his leaf raking though. Anyway after the parade Lara had her party at school and we went home. After school we spent time all together before my parents left to go home for dinner and leaf raking. Anthony was a bumble bee, Lara and I were lady bugs and Greg was “Father Guido” from “Saturday Night Live”. We were an interesting group. We went Trick or Treating at about six. We only went to about half our block and finished at seven. The last house was Greg’s dads house were we spent a lot of time. I left to check on the candy left at our door and there was a huge group that hadn’t seen the bowl so I am glad I go there when I did. I gave out the candy and they all said they liked my decorations. I have a lot of lights up. A car even stopped in the street and said nice decorations! After that I stayed at home and gave out candy and we had a lot of Trick or Treaters this year so it was fun.

Today I have the lunch with the ladies in the big city. I am excited and nervous at the same time as I rarely go to New York City. I feel like such a country bumpkin there, and am still affected by 9/11 so I just usually dint go there. Greg’s sister and dad will watch the children while we are out. His sister has games planned and lunch all set up so they should have a good time as well.